Heterotaxy Syndrome

Connecting Heterotaxy Families

Around the World.

The Stats.

Heterotaxy effects 4 out of a million live births.

There is HOPE.

Just 10 years ago Heterotaxy carried a very poor prognosis.  Most babies died within the first year of life.  Now, with advances in pediatric heart surgery many kids can now grow up into adulthood.
 
What is Heterotaxy Syndrome?

What is Heterotaxy Syndrome?

People born with Heterotaxy Syndrome have an abnormal arrangement of the organs. In most cases, complex congenital heart defects are present.

Affected by Heterotaxy?

Affected by Heterotaxy?

This is such a rare condition that only a handful of centers in the world are equipped to deal with it. As a parent, it's your obligation to educate yourself, that can save your child's life.
Connect with Others

Connect with Others

Connect with other Heterotaxy parents and patients in our Facebook group.
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